I think I’ve officially been teaching too long. All this writing on my classroom whiteboard is starting to get tough! The arm I write with is like Jell-O. Struggling today…may need a nap lol!

Fellow teachers: What materials do you use for sharing information with your class during lessons? I need an alternative to writing on the board.

I may lose my volunteer job as scorekeeper on Anthony’s baseball team—I’ve got to do something about this handwriting.

Just got back from the doctor, they think I have a radial nerve injury! Look at my wrist!

Started on a course of steroids for my wrist! Fingers crossed for some relief…

My doctor wants me to have surgery on my wrist, but I’m nervous about some of the risks. Has anyone ever had this surgery and can share their experiences?

Really struggling here, it feels like this issue with my wrist is now affecting my whole arm. What is going on?!?!

I’m at the hospital having some electrophysiological tests on my arm. It seems like things have gotten worse since I started the steroids! Really hoping for some answers.

It looks like all my electrophysiological testing is good! I’m relieved but so confused, just want to know what’s going on…

After undergoing weeks of tests, it appears the muscle weakness I’ve been experiencing is due to Lou Gehrig’s disease, also known as ALS. ALS is a fatal, progressive disease. I could use all the love and support I can get. I know I can get through anything with my family by my side, but this is one of the most difficult moments of my entire life.

I start my new ALS treatment today!

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This diagnosis has got me feeling so down. Could use some uplifting music – got any recommendations?

I have been on my ALS treatment for 4 months now and it just doesn’t seem to be helping at all. I’m feeling so discouraged.

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I’m considering looking for a second opinion on my diagnosis. My treatment doesn’t seem to be working, and the more I read and learn about ALS, the more I question this diagnosis. Does anyone know a good neurologist?

I managed to find a neuromuscular specialist who is taking new patients! I’ve got an appointment in 6 weeks – really hoping they’ll be able to shed some light on my illness.

I finally have my appointment today with a specialist across the state to explore my options! Wish me luck!

I feel like I’ve witnessed a miracle! With further testing, I’ve learned I have a neuromuscular autoimmune disease called MMN. I know it probably seems crazy to be celebrating over a diagnosis like MMN, but I am SO JOYFUL it is NOT ALS!

On my way to the infusion center—I start treatment for MMN today.

This is my nurse, Stephanie! She’s the best! Makes these trips to the infusion center so fun. Pretty soon, after I'm trained by an HCP, I'll be able to do my infusions at home, which will be fantastic, but I will sure miss my visits with Stephanie!

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Look at this progress! 6 months ago I thought I had ALS, but now I’ve been correctly diagnosed with MMN and on a treatment that works for me!